When I got home from my Anterior Cervical Discectomy & Fusion surgery, the girls (dogs), were very excited. Even more than the usual excitement they express whenever I return from being away for as little as an hour. But I couldn't do much, so they settled down relatively soon. My first night home I just relaxed and watched a little TV.
12/24/2009
I had a very good nights sleep. I felt pretty good in the morning. I took the dogs for a walk up to the park and back. It had just snowed, again, so I ended up having to do most of the walking in the street. Fortunately, the girls have been trained not to pull on the leash, so I had no problems walking with them, even though I was a little sore and it would not have been go if they had pulled the leash.
12/25/2009
Again, had a pretty good nights sleep. We both stayed up until about 1:30am, then slept in until about 10:00am. I took the dogs for another walk. In the afternoon, we went over to Deanna's Mom's for Christmas dinner. She had everything fixed and didn't want us to bring anything, so we didn't. It was really good, but I didn't have much of an appetite. She fixed prime rib, mashed potatoes, gravy, mixed vegetables, squash, carrot salad, pumpkin bread and tapioca pudding, which was great. It was difficult to swallow the meat, but the salad was very good. We came home with left overs, which was very nice.
We had company in the evening. Megan and James brought Griffin, and Aaron and Heidi brought Jaycee and Caden. It was interesting to just sit back watch the family dynamics. Although they are brother and sister, they couldn't be further apart in their lifestyles and attitudes. It's sort of like trying to mix oil and water. Griffin really likes Jaycee, and was running up to her all night for hugs. We tried to get the kids to play downstairs with the Wii, or the DVDs, or the computer, but that only kept their attention for a few minutes before they were all back upstairs wanting to be part of the family group.
12/26
Woke up in the morning and I couldn't talk. I felt worse than any other day since my complications with open heart surgery. My shoulders and neck were really sore. The pain pills couldn't touch the pain, and all I could do was whisper. I spent the entire day just sitting, reclined on the couch, which was the only comfortable position I could find.
The kids came over later at night. Trevor and Becca brought Jordan, Addie, and Myia. Lindsey brought Avery, Crew, Cade, and Afton. Scott didn't come because his work paid for dinner and front row tickets to the Jazz game that night. Deanna sent Trevor for bake at home pizza.
12/27/2009
Slept in. Still couldn't talk. Felt even worse as if that was possible. Can't eat much. It's hard to swallow and keep anything down, even liquids. It goes halfway down my throat, then gets stuck.
12/28
Deanna went back to work. I felt a little better. Slept most of the day and took a lot of pain meds (the normal dosage only).
12/29
I felt 25% of normal. So what does that mean? I could get around OK once the pain meds kicked in. My throat was a little better. At least I could talk hoarsely instead of just whisper.
12/30
I was sitting at the kitchen table, trying to eat while reading the morning paper when I came upon this article by Doug Robinson: Past Glory Makes Pain For Today (I have abbreviated the article)
The first thing I noticed when I bumped into an old acquaintance in the mall one afternoon was the neck brace. Then he showed me the scar. (I have the same scar that is still swollen as I am reading this article)
Jim Herrmann, co-captain of BYU's 1984 national championship football team, pulled aside his collar to show me a raised crimson lip on his lower neck where a surgeon had entered to repair his neck.
"Football," he said.
Football? Herrmann is 46 years old. We did the math — he hadn't played football in 22 years, which means he had likely carried the beginnings of the injury all those years and didn't know it until it manifested itself one night as white-hot pain shooting down his arm.
The doctor looked at the MRI and said, "It looks like you've pounded on your neck." Herrmann explained that he had played football. Ah, the doctor said, that explains it. The injury wasn't the result of one play or a trauma; it was the accumulation of hundreds of ordinary crashes on a football field. (This is basically what my doctor told me. The only problem is that I never played football. In fact, I never played any type of ball in college or even in high school. At no time in my life have I ever injured, or jarred, or hit my neck in any way shape or form to playing football. The only thing I can remember was that I was in a car accident when I was eight years old had hit my head, and was unconscious for 2 days. I have had many other medical problems, but this neck problem was a real puzzle to the doctor who kept searching, but never found a reason, for the problem.)
"It's not just me," Herrmann said. "A lot of other players have the same problems and are worse off than me. All those years of pounding your head against big guys takes its toll on your body."
During the reunion of BYU's '84 championship team last fall, he learned that many of his teammates have had similar experiences in middle age. Kyle Morrell, unable to sleep at night because of pain in his shoulder, underwent surgery. Glen Kozlowski had chronic pain and was unable to use his left arm until he underwent neck surgery. (This was the main symptom that lead me to search for an answer as to what was causing the pain.) Other teammates told of pain that showed up late in their knees, backs, necks and shoulders.
... But then a few months ago, he woke up with a knot behind his left shoulder that grew into excruciating pain during the next two months. By then, his hand felt as if he had struck his crazy bone — "but 10 times worse." A searing, burning sensation shot down his arm and into his hand and fingers. Parts of his hand were numb and hot. He ate Advil and got massages.
He was asked to carry the flag before the start of the BYU-Utah game as part of the 25th anniversary of that '84 championship team, but by then he couldn't even use his left arm. The day before the game, he was injected with a painkiller using a long needle inserted into his neck and spine — just so he could carry a flag.
A few days later, the pain returned with a vengeance. Because of the pain, he couldn't sit, couldn't sleep, couldn't drive a car. The only relief he found was the standing position, with his left arm raised above his head. Unable to sleep, he paced the house all night looking like a crazy man with that arm raised high, an ice pack on his neck and tears in his eyes. (My symptoms were not this bad, but at times I could see where it was on track to getting there.)
... He saw a specialist and underwent surgery. The surgeon cut into the front of his neck, moved his esophagus to one side and worked his way back to the spine. He removed bone spurs and three herniated discs that were impinging on his spinal cord, replacing them with bones from a cadaver to complete a three-level spinal fusion. He secured the repaired discs with a titanium plate and screws. (Exactly the operation I just had, and am still recovering from.)
"It's the first time I've ever questioned the value of football — was it all worth it?" says Herrmann. "It's funny, in pre-op, ESPN was on the TV and they were showing football highlights. I told them to change the channel. I couldn't stand to watch those guys banging heads. But afterward, I turned on the TV to watch college football.
"I am not complaining. I am so grateful for my life and football. The place I live and many of my good friends are because of football. I would say the vast majority of my teammates would say they would do it over again, and I think you've got to put me in that category. But there were times when I wondered." (And I still had the same problem, but without the fun and benefits of playing football.)
12/31/2009
Last night was a particularly bad night. I coughed and coughed, and coughed some more. Before I went sleep, I just sat on the edge of the bed and coughed over and over again, real deep coughs, trying to clear my throat. But it just wasn't happening. I was only half asleep for most of the night because of my coughing. Somehow my mind kept making the coughs animated. It was as if they had a life of their own. It seemed like they were just sitting on a book case ledge, and every once a while one of them would just go off. It was scaring me how violent the coughs were. Needless to say the back of my neck (outside muscles), are sore this morning,a and the area around the incision is red and swollen.
I called the Doctor's office at about 10:00 am and talked to the nurse. I was concerned about the coughing and the hoarseness lasting so long. I told her that I didn't think my throat was getting better; that I was having a hard time swallowing; that I couldn't talk' and that I was coughing what seemed to be all night long. She said she would talk to Dr. Mark and let me know.
I called back later in the afternoon and talked to the nurse again. She said she still hadn't heard from Dr. Mark.
Later that afternoon, around 4:30 she called back and said that the Dr. said ordered a steroid pack for my throat. He told her that what I was experiencing was normal, and could last 4 to 5 weeks. She asked if I wanted to order the steroid pack, which is basically a tapered dose of steriods (starts out with a lot, then tapers to none). I told her no. I was just making sure that what I was going through was normal. Besides, I was already on steroids - prednisone. She agreed that I shouldn't have both, so I am just going to continue on as normal.
Today I felt about 30% of normal. My neck hurt a little, my shoulders a little more, but the worst part still is my throat. Still difficult to swallow, and when I do, it never goes all the way down. Then I cough - a lot. That causes more problems with my throat and it's like and endless circle. Even food that you would think would be easy to eat, like soup, or ice cream, are difficult. Not only to swallow, but because of the after-taste which causes me to cough more and more. Jello is good. It feels good going down, and it doesn't cause me to cough. Salad also is good. I think because it has a lot of water content, and not a lot of salt.
I tried taking cough syrup (NyQuil), to make me stop coughing at night, but it actually made my cough much worse. It irritated my throat and caused me to cough for 10 minutes straight, plus all night at intermittent intervals. Not a good plan.
1/1/2010
Last night was not as bad. I didn't take any cough medication, which makes me cough, or pain medication which keeps me awake. I stayed up late so that I would be really tired. But I still had to cough all night, just not as bad as last night. I got up early and moved to the couch and reclined with a pillow and blanket, which helped stop the cough - not completely, but somewhat. This morning the back of my neck and shoulders really hurt. I took some oxycondone, and later some Tylenol and Soma, which finally took the pain away. As I am writing the pain in my neck and shoulders is increasing, so I'm going to have to go relax again for a while.
1/2/2010
Deanna had today off. I didn't do much, other than watch TV all day. I don't have a lot of energy, probably from not getting a good nights sleep. The pain is still in my shoulders and neck, but it's getting better. Still taking oxycodon as needed, but always less than 2 or 3 per day.
1/3/10
Not much change. Couldn't sleep because of coughing. Still have pain in shoulders and neck. But feeling about 50% of normal now.
1/4/10
Two steps backwards. Yesterday was great compared to today. Still coughing, not sleeping, and achy. Deanna went to church today, but I stayed home. I managed to clean up the kitchen a little, but that was about it. Just felt like I am going backwards instead of feeling like I making progress.
1/5/10
Feel a little better today - about the same as I felt on Saturday. Deanna and I both had a dentist appointment early in the morning. I wasn't sure if I was going to be able to make it through, laying back, with my mouth open, and not coughing. But I did make it through. The appointment was for a cleaning and checkup. For the first time, in as long as I can remember, I had no cavities.
I was able to do a little work on the computer. But after sitting for a couple of hours my neck starts hurting again.
1/6/10
I couldn't get up and going until about 3:00pm. I tried watching TV, but kept falling asleep, which was the desired result. Once I got up and going I was OK. Don't know if it was the cumulative lack of sleep, or the cough medicine that I took that made me so drowsy all day, but today wasn't very productive - which can be said of every day for the last month.
1/7/10
I thought I was going to be OK last night. When I tried to go to sleep I had no cough. So I decided to move into the bedroom and try to sleep on a real bed for a change. Big mistake. That caused me to start coughing again, and it never ended - until about 7:30am. But I was able to get up and after taking an oxycodon, I felt OK. I took the dogs for a walk, and now I am typing away.
1/8 - 1/12/10
Not much happening for me to write every day. I am still coughing a lot, unable to sleep at night, and not having much energy. Some days I can take the dogs for a walk, but some days I'm just not up to it.
1/27/10
I'm feeling better, but still don't have the energy I used to have. I still get tired real easily. Last night was the first night I was able to sleep without taking anything. Before then I used to take cough medicine with codeine, a sleeping pill, a decongestant, and another type of cough syrup - Tussinex. I was able to gradually get off of them one at a time over a two week period. I can now sleep in bed, as opposed to sleeping on the couch in a sitting position. But like I said, I still don't have much energy.
I still can't talk any better. I'm hoping it will get better, but we are beginning to think it may be permanent. I see the doctor the first week in February, so I will know more then.
2/1/10
Went to see Dr. Mark today. Before the doctor's appointment, I had to get an x ray of my neck. Then I went to the appointment. I wa 5 minutes early, and they took me back to an exam room right away. But as normal, once I was in the exam room, I was a captive patient. So I waited, and waited, and waited, and waited. Did I tell you I had to wait? Finally Dr. Mark made an appearance. He asked me how I was doing, and I told him I felt pretty good. He looked at the x ray, and I was able to look at it too. I saw a big plate that ran from the C4 to the T1 vertebrae. There were four screws attaching the plate to my spine. It was weird to see the actual screws. They looked like everyday common wood screws, in my neck.
He did some tests on my hands to determine if I had more strength in my left hand, which I did.
I asked him about my voice and he said that I should get it back, probably in a month or so. He also said that people who have a problem with the voice not coming back don't sound as good as I did. If it doesn't come back in a month, he will send me to an ENT to see what is going on.
So for now, I am feeling better. The pain in my shoulder is gone, but I still have minor pain periodically in my neck, but it is gradually getting better. I don't think it is any worse than what is normal for most people, so nothing to complain about. Now I just have to wait and hope that my voice will come back.
Saturday, January 2, 2010
Tuesday, December 29, 2009
12/2009 - Anterior Cervical Discectomy & Fusion
12/22/2009 Anterior Cervical Discectomy With Interbody Fusion and Plating of Levels C5 - T1:
The first call from the hospital was to get my medical history and a list of all my medications. I have had all of my surgeries (in the double digits) done at this hospital chain, with the most recent surgery less than a year ago, so they already had all of my history and medications. But they had to get all of the information again. And they couldn't just verify what they had was correct. They had to get all of the information from me. It's a good thing that I had it all written down.
The next call was to inform me what time my appointment was. It was set for 9:30 am, which is a good time. Not too early, so I don't have to get up early in order to get to the hospital just in time to wait for the doctors. Not too late, so I don't have to go all day and all night without food or water before the operation. It was the ideal time.
The third call was to give me instructions, which Deanna gives to patients all the time. Nothing to eat of drink after midnight, including chewing gum, mints, throat lozenges, etc. I was told which medications I could take before I left for the hospital, and was told to wear something comfortable, that I could fold up and store until I was read to go home. There is only one part of these instructions that I have a problem with. They don't tell you "...nothing to eat or drink for 6 hours before the operation", but rather they tell you "...nothing to eat or drink after midnight". Now if you are the first person scheduled to be operated on, at 6:00 am then that is fine. But what if you are scheduled to be operated on at 2:00 pm? That means that you have nothing to eat or drink for 14 hours, while the person who is operated on at 6:00 am only has to go 6 hours with nothing to eat or drink. Not fair! Doesn't make sense. But then they say that they could call you in early, but if you have eaten they couldn't. But I speak from experience. From the time that they know that you are going to come in early, it takes at least 6 hours to get for them everything ready (in my opinion). First you have to travel to the hospital. Then you have to wait to register. Then you have to change your clothes. Then you have to get an initial exam. Then you have to wait for someone to come and get you. Then you have to wait for the room. There is no way that they will do all that in less than 6 hours. So if they need you to come in early, they call and say come in now and don't eat anything. By the time you get there, and get all set up, and get to the operating room it will be six hours. But wait! If they do it that way, there is a small, slight, minimal chance that the doctor may have to wait for 30 minutes, or heaven forbid an hour. Much better to have every single patient starve for part of a day so that the doctor doesn't have to wait. Because if he has to wait, he's not making money. And of course, there is nothing else he could be doing to keep himself busy while they are getting you ready for an operation.
We get to the hospital 5 minutes early because we don't want to make anyone wait for us. They have a registration kiosk that is pretty efficient - if you know that it's there. Since I have been there many times, I know what to look for. It's touch screen (don't worry, they have disinfectant and wipes available), and all you have to do is enter your first name, last name, and the number of the electronic beeper that is sitting on a table next to the kiosk. It's similar to one of the beepers you are given when you sign in at at busy restaurant. When they have a table ready for you, the bells, lights, and whistles go off. So we take our beeper and sit down to wait. After about 20 minutes we get beeped. We go to the front desk. There they have all of our information, already filled out by the person who made the first call to gather information. But it seems they didn't send me a form to fill out like they promised, so Deanna had to fill it out. Since she fills out these forms all day, it didn't take her long to fill it out. When it's all filled out we take it back up to the desk again, and we are told that the next time we are beeped we need to go down this hall to the right, then turn left, and someone will help us.
We didn't have to wait long before the beeper was beeping. We found where we were supposed to go, and were shown into the dressing/exam room. Blood pressure, weight, and temperature were taken. I was given a wonderful hospital gown to change into. Now I've been in and out of hospitals for the last 50 years, and while the hospitals may have changed, and the procedures have changed, the doctors and nurses have changed, there is one thing that has not changed - the hospital gown. Since at least the 1960's every gown I have worn has basically been the same. A very nondescript blue pattern, short sleeves with snaps to open and close the sleeve, and with a tie in back of the neck and on the side. I don't remember when, but it was quite a few years ago that they began to give you pants to wear with the gown. Before then, all you got was a single (ICU - I see you) gown.
We went over the basics with the nurse, where she told us about what was going to happen next. We told her that we had a couple of questions for the doctor. Deanna remembered him telling us that they were going to operate on C4 - T1, but the papers the nurse had said they were going to be operating on C5 - T1. I also wanted to talk to the doctor to make sure that he understood that the reason for having the operation was to relieve the pain in my neck, not only to fix the nerve and muscle damage in my arm. The nurse said that the doctor never talks to the patients before the operation, which is quite unusual. The nurse even admitted that it is not the normal practice for most doctors, but that he will talk to Deanna immediately after the operation, and will come see both of us before we leave the hospital. She said she would share our concerns with him. Deanna asked who was going to mark the spot of the incision - it's a hospital policy to mark the spot of the surgery while the patient is still awake to make sure they don't operate on the wrong location. Doctors have been known to amputate the wrong arm or leg, so it's a very important policy. The nurse said she didn't know who would mark the spot. In reality it didn't matter because there wasn't a right or a left to mix up, and if the doctor got in there and found that the problem was on different discs I don't think he would be waking me to get my approval to make a change in the diagnosis.
Deanna gave me the IV.
After we were all ready, the nurse told us that the doctor had had an emergency earlier in the morning and was running a half hour late. So instead of leaving for the operating room at 11:15, we would have to wait until 11:45. I was glad to hear the 15 minute interval. That at least told us that the estimates were somewhat accurate. At 1:30 pm they finally came to wheel me up to the operating room.
As they were taking me up to the operating room, I realized something really scary. I recognized the hallways in the basement, from being there before - for a different operation in a different building. But they shared surgical services so I was going to the same part of the complex. When we got to the floor of the operating room I asked the nurse which floor we were on. She said the 14th floor. I later learned that it was a lie. Actually it was the 13th floor. But that brings up another hospital policy I don't quite understand. Why don't they number the 13th floor as 13? Isn't this an institute of higher learning and education? And if people are really superstitious about the 13th floor, do they really think that calling it the 14th floor will counteract the superstition? And why is a hospital perpetuating the myth? People with superstitions may find validation in the fact that even hospitals, with all the smart doctors, won't even name the 13th floor. Now as I see it, the only way to avoid the problem is to have a 13th floor, but just have it be storage and maintenance floor. But of course they couldn't do that because then they would always be having problems with maintenance - because it's on the 13th floor. So maybe they should just have a 13th floor and just have it be empty. But then a lot of prime patient room space, with great views, would be wasted simply due superstitions. Much better to just rename the floor - even though everyone knows it won't make any difference. That way people on the floors above will feel they are one floor higher, which we all know is better and more costly. But then again, if we go back to having an empty 13th floor, you could make it so that it wouldn't really cost that much. Just make the floor one foot tall. Give it a fake ceiling and a fake floor. It would technically still be the 13th floor. You could even give it a number on the elevator, but the elevator wouldn't stop there, and in the stairwell, you would only have a crawl space. But hey, that's too much work just for a superstition. So they compromise and give in the superstitious and just rename the 13th floor 14. After all, it's just a number. Right?
So they are wheeling me down the hall. For some reason this is one part of the procedure I always remember. Going down the hall, looking at the ceiling tiles, trying to figure out where we are and where we are going. We finally get to the operating room, and I am left in the hall while the cleaning crew finishes moping the floor and getting everything ready. They put me next to a wall of windows on the east side of the hospital, overlooking the helicopter pad, with a city park across the street. It's a dark gray out, even though it's the middle of the day, and it's snowing. I see the cars driving up and down the main street of the city, although there's not much traffic. I watch the snow flakes flutter past the window as they descend towards their final resting spot below. As I'm watching, someone wheels in a huge piece of medical equipment into my room. I have now claimed it as my room.
Then someone approaches from behind my head. He introduces himself. Of course I don't remember his name, but I do remember him. He was the anesthesiologist. I remember him because he was different. He was elderly, 50 - 60, and black. Being from Utah, that is rare. He must be really good, to be a minority, at his age, in a white state. He had my full confidence then and there. He said he was going to give me something to get me started before they took me into the room. I never saw what he did, if anything.
Soon thereafter the doctor himself appears. This wasn't supposed to happen. He NEVER talks to his patients before the operation. But yet here he was. He asked how I was doing. I told him I was fine. He said he was told that I had some questions. I told him about our concerns and he reassured me that it was the C5-T1 that they would be operating on and that while nothing is guaranteed, that it should help relieve the shoulder pain. Or at least something to that effect. Then he was gone. I assume he went into the operating room, but things were a little hazy by that time.
The time finally arrived. Two of them came out to get me. I was outnumbered, and there was nowhere to run, so I just gave up and let them take me. Once inside the room I looked around, but don't remember much. I saw a couple of people getting the last of their operating scrubs on, and some were playing with equipment. They asked me to move off of the gurney and onto the operating table. Remember when I said some things have never changed - like gowns? Well, one of the biggest, and best improvements hospitals have made over the last couple of years is the operating table. I remember when it was a cold, hard, metal table. Now it is a firm, foam like surface that you just sink into. It's great! So, they had me slide onto the operating table. Now normally is when the anesthesiologists tells me he is going to put me to sleep. But not this time. After moving onto the table, I don't remember anything until I was waking up in the recovery room, and even that is a little hazy. I would have remembered more if I had written it down as I was waking up, but they didn't let me take my laptop with me.
I do remember that I didn't sleep at all that night. I just watched mindless TV the entire night. I wasn't in much pain at all. I'm not sure, but I think I had dinner, which was pretty good. I think it was fish and mashed potatoes. I remember adjusting the pillows a lot during the night. I did actually try to sleep for a couple of hours, but sleep just wasn't going to happen. But let me tell you about the TV. I've been in hospitals where the TVs looked like they had been purchased from DI, or Good Will. Not here. It was a new hospital, and they had new TVs. Not only TVs, but a HD, flat screen with Direct TV Satellite. And big! It was at least a 48" TV, mounted on the wall, and came with a remote. Unfortunately it wasn't until I was getting ready to leave that I found out there was a remote. I had been using the up and down buttons in the bedside controls. But the remote had everything. Combine the TV with the really great food in the hospitals, and it seems like people would check in just for the food, TV, and house keeping. I'm sure that if you made a study, you would find that people would opt to stay an extra day or two if they were given an option.
12/23/2009
The next morning Deanna wanted to be able to sleep in before coming to pick me up. But the nurse came in early and said that the doctor had written my discharge papers. So I called Deanna to come and pick me up (it was at 8:30 am). The nurse popped in and said that he had to take care of someone else, but that he would be back soon. I told him to take his time.
Deanna got there shortly before the nurse came back. She took out my IV, much to the delight of the nurse. He then went over the discharge instructions, including the pain medication I was going to be taking, with a description of what they were and all the information about them. They gave me a script for Carisoprodol (the same thing as Soma), 350mg tablet taken 3 times a day as needed for pain spasm. Tramadol (same thing as Ultram), 50mg tablet every 4 hours as needed for pain. He also had a prescription for Oxycodone, but since I already had some at home, I didn't take the prescription for it.
The discharge papers said to do the following:
1. Call and make a follow-up appointment 4-6 weeks from the date of the surgery.
2. Keep the incision clean. They said not to get it wet, not to take a bath where the moisture would rise and make it wet, I could take a shower if I covered the incision with a plastic bag and tapped it off. But in my experience, that process has never kept anything dry, so I just took sponge baths, or rather I had my private nurse give me a sponge bath.
3. The discharge papers said that my throat may be sore from the endotracheal tube which is part of general anesthesia. They also said that I should expect some muscle stiffness and overall body fatigue. Adequate rest and nutrition will contribute to the healing process.
4. Walk as much as you can! No lifting greater than 25lbs. Minimize twisting, bending, squatting, and stooping. Do only what it takes to get dressed. The cervical collar is optional; if I find that it provides support, then I should wear it when up and around or any other time if helpful.
5. I should be careful with the pain medications since they are habit forming. I should resume all pre-admission medications that I had been taking.
So it was finally time to go home. Here is where the nurse usually calls for a wheelchair. Even if you are able to walk, and have been walking in the hospital for some time, you still had to use a wheel chair - for "legal reasons". But to my surprise, when Deanna asked if I could walk out on my own, the nurse said yes - just check out at the desk. So I did. I just walked out.
The first call from the hospital was to get my medical history and a list of all my medications. I have had all of my surgeries (in the double digits) done at this hospital chain, with the most recent surgery less than a year ago, so they already had all of my history and medications. But they had to get all of the information again. And they couldn't just verify what they had was correct. They had to get all of the information from me. It's a good thing that I had it all written down.
The next call was to inform me what time my appointment was. It was set for 9:30 am, which is a good time. Not too early, so I don't have to get up early in order to get to the hospital just in time to wait for the doctors. Not too late, so I don't have to go all day and all night without food or water before the operation. It was the ideal time.
The third call was to give me instructions, which Deanna gives to patients all the time. Nothing to eat of drink after midnight, including chewing gum, mints, throat lozenges, etc. I was told which medications I could take before I left for the hospital, and was told to wear something comfortable, that I could fold up and store until I was read to go home. There is only one part of these instructions that I have a problem with. They don't tell you "...nothing to eat or drink for 6 hours before the operation", but rather they tell you "...nothing to eat or drink after midnight". Now if you are the first person scheduled to be operated on, at 6:00 am then that is fine. But what if you are scheduled to be operated on at 2:00 pm? That means that you have nothing to eat or drink for 14 hours, while the person who is operated on at 6:00 am only has to go 6 hours with nothing to eat or drink. Not fair! Doesn't make sense. But then they say that they could call you in early, but if you have eaten they couldn't. But I speak from experience. From the time that they know that you are going to come in early, it takes at least 6 hours to get for them everything ready (in my opinion). First you have to travel to the hospital. Then you have to wait to register. Then you have to change your clothes. Then you have to get an initial exam. Then you have to wait for someone to come and get you. Then you have to wait for the room. There is no way that they will do all that in less than 6 hours. So if they need you to come in early, they call and say come in now and don't eat anything. By the time you get there, and get all set up, and get to the operating room it will be six hours. But wait! If they do it that way, there is a small, slight, minimal chance that the doctor may have to wait for 30 minutes, or heaven forbid an hour. Much better to have every single patient starve for part of a day so that the doctor doesn't have to wait. Because if he has to wait, he's not making money. And of course, there is nothing else he could be doing to keep himself busy while they are getting you ready for an operation.
We get to the hospital 5 minutes early because we don't want to make anyone wait for us. They have a registration kiosk that is pretty efficient - if you know that it's there. Since I have been there many times, I know what to look for. It's touch screen (don't worry, they have disinfectant and wipes available), and all you have to do is enter your first name, last name, and the number of the electronic beeper that is sitting on a table next to the kiosk. It's similar to one of the beepers you are given when you sign in at at busy restaurant. When they have a table ready for you, the bells, lights, and whistles go off. So we take our beeper and sit down to wait. After about 20 minutes we get beeped. We go to the front desk. There they have all of our information, already filled out by the person who made the first call to gather information. But it seems they didn't send me a form to fill out like they promised, so Deanna had to fill it out. Since she fills out these forms all day, it didn't take her long to fill it out. When it's all filled out we take it back up to the desk again, and we are told that the next time we are beeped we need to go down this hall to the right, then turn left, and someone will help us.
We didn't have to wait long before the beeper was beeping. We found where we were supposed to go, and were shown into the dressing/exam room. Blood pressure, weight, and temperature were taken. I was given a wonderful hospital gown to change into. Now I've been in and out of hospitals for the last 50 years, and while the hospitals may have changed, and the procedures have changed, the doctors and nurses have changed, there is one thing that has not changed - the hospital gown. Since at least the 1960's every gown I have worn has basically been the same. A very nondescript blue pattern, short sleeves with snaps to open and close the sleeve, and with a tie in back of the neck and on the side. I don't remember when, but it was quite a few years ago that they began to give you pants to wear with the gown. Before then, all you got was a single (ICU - I see you) gown.
We went over the basics with the nurse, where she told us about what was going to happen next. We told her that we had a couple of questions for the doctor. Deanna remembered him telling us that they were going to operate on C4 - T1, but the papers the nurse had said they were going to be operating on C5 - T1. I also wanted to talk to the doctor to make sure that he understood that the reason for having the operation was to relieve the pain in my neck, not only to fix the nerve and muscle damage in my arm. The nurse said that the doctor never talks to the patients before the operation, which is quite unusual. The nurse even admitted that it is not the normal practice for most doctors, but that he will talk to Deanna immediately after the operation, and will come see both of us before we leave the hospital. She said she would share our concerns with him. Deanna asked who was going to mark the spot of the incision - it's a hospital policy to mark the spot of the surgery while the patient is still awake to make sure they don't operate on the wrong location. Doctors have been known to amputate the wrong arm or leg, so it's a very important policy. The nurse said she didn't know who would mark the spot. In reality it didn't matter because there wasn't a right or a left to mix up, and if the doctor got in there and found that the problem was on different discs I don't think he would be waking me to get my approval to make a change in the diagnosis.
Deanna gave me the IV.
After we were all ready, the nurse told us that the doctor had had an emergency earlier in the morning and was running a half hour late. So instead of leaving for the operating room at 11:15, we would have to wait until 11:45. I was glad to hear the 15 minute interval. That at least told us that the estimates were somewhat accurate. At 1:30 pm they finally came to wheel me up to the operating room.
As they were taking me up to the operating room, I realized something really scary. I recognized the hallways in the basement, from being there before - for a different operation in a different building. But they shared surgical services so I was going to the same part of the complex. When we got to the floor of the operating room I asked the nurse which floor we were on. She said the 14th floor. I later learned that it was a lie. Actually it was the 13th floor. But that brings up another hospital policy I don't quite understand. Why don't they number the 13th floor as 13? Isn't this an institute of higher learning and education? And if people are really superstitious about the 13th floor, do they really think that calling it the 14th floor will counteract the superstition? And why is a hospital perpetuating the myth? People with superstitions may find validation in the fact that even hospitals, with all the smart doctors, won't even name the 13th floor. Now as I see it, the only way to avoid the problem is to have a 13th floor, but just have it be storage and maintenance floor. But of course they couldn't do that because then they would always be having problems with maintenance - because it's on the 13th floor. So maybe they should just have a 13th floor and just have it be empty. But then a lot of prime patient room space, with great views, would be wasted simply due superstitions. Much better to just rename the floor - even though everyone knows it won't make any difference. That way people on the floors above will feel they are one floor higher, which we all know is better and more costly. But then again, if we go back to having an empty 13th floor, you could make it so that it wouldn't really cost that much. Just make the floor one foot tall. Give it a fake ceiling and a fake floor. It would technically still be the 13th floor. You could even give it a number on the elevator, but the elevator wouldn't stop there, and in the stairwell, you would only have a crawl space. But hey, that's too much work just for a superstition. So they compromise and give in the superstitious and just rename the 13th floor 14. After all, it's just a number. Right?
So they are wheeling me down the hall. For some reason this is one part of the procedure I always remember. Going down the hall, looking at the ceiling tiles, trying to figure out where we are and where we are going. We finally get to the operating room, and I am left in the hall while the cleaning crew finishes moping the floor and getting everything ready. They put me next to a wall of windows on the east side of the hospital, overlooking the helicopter pad, with a city park across the street. It's a dark gray out, even though it's the middle of the day, and it's snowing. I see the cars driving up and down the main street of the city, although there's not much traffic. I watch the snow flakes flutter past the window as they descend towards their final resting spot below. As I'm watching, someone wheels in a huge piece of medical equipment into my room. I have now claimed it as my room.
Then someone approaches from behind my head. He introduces himself. Of course I don't remember his name, but I do remember him. He was the anesthesiologist. I remember him because he was different. He was elderly, 50 - 60, and black. Being from Utah, that is rare. He must be really good, to be a minority, at his age, in a white state. He had my full confidence then and there. He said he was going to give me something to get me started before they took me into the room. I never saw what he did, if anything.
Soon thereafter the doctor himself appears. This wasn't supposed to happen. He NEVER talks to his patients before the operation. But yet here he was. He asked how I was doing. I told him I was fine. He said he was told that I had some questions. I told him about our concerns and he reassured me that it was the C5-T1 that they would be operating on and that while nothing is guaranteed, that it should help relieve the shoulder pain. Or at least something to that effect. Then he was gone. I assume he went into the operating room, but things were a little hazy by that time.
The time finally arrived. Two of them came out to get me. I was outnumbered, and there was nowhere to run, so I just gave up and let them take me. Once inside the room I looked around, but don't remember much. I saw a couple of people getting the last of their operating scrubs on, and some were playing with equipment. They asked me to move off of the gurney and onto the operating table. Remember when I said some things have never changed - like gowns? Well, one of the biggest, and best improvements hospitals have made over the last couple of years is the operating table. I remember when it was a cold, hard, metal table. Now it is a firm, foam like surface that you just sink into. It's great! So, they had me slide onto the operating table. Now normally is when the anesthesiologists tells me he is going to put me to sleep. But not this time. After moving onto the table, I don't remember anything until I was waking up in the recovery room, and even that is a little hazy. I would have remembered more if I had written it down as I was waking up, but they didn't let me take my laptop with me.
I do remember that I didn't sleep at all that night. I just watched mindless TV the entire night. I wasn't in much pain at all. I'm not sure, but I think I had dinner, which was pretty good. I think it was fish and mashed potatoes. I remember adjusting the pillows a lot during the night. I did actually try to sleep for a couple of hours, but sleep just wasn't going to happen. But let me tell you about the TV. I've been in hospitals where the TVs looked like they had been purchased from DI, or Good Will. Not here. It was a new hospital, and they had new TVs. Not only TVs, but a HD, flat screen with Direct TV Satellite. And big! It was at least a 48" TV, mounted on the wall, and came with a remote. Unfortunately it wasn't until I was getting ready to leave that I found out there was a remote. I had been using the up and down buttons in the bedside controls. But the remote had everything. Combine the TV with the really great food in the hospitals, and it seems like people would check in just for the food, TV, and house keeping. I'm sure that if you made a study, you would find that people would opt to stay an extra day or two if they were given an option.
12/23/2009
The next morning Deanna wanted to be able to sleep in before coming to pick me up. But the nurse came in early and said that the doctor had written my discharge papers. So I called Deanna to come and pick me up (it was at 8:30 am). The nurse popped in and said that he had to take care of someone else, but that he would be back soon. I told him to take his time.
Deanna got there shortly before the nurse came back. She took out my IV, much to the delight of the nurse. He then went over the discharge instructions, including the pain medication I was going to be taking, with a description of what they were and all the information about them. They gave me a script for Carisoprodol (the same thing as Soma), 350mg tablet taken 3 times a day as needed for pain spasm. Tramadol (same thing as Ultram), 50mg tablet every 4 hours as needed for pain. He also had a prescription for Oxycodone, but since I already had some at home, I didn't take the prescription for it.
The discharge papers said to do the following:
1. Call and make a follow-up appointment 4-6 weeks from the date of the surgery.
2. Keep the incision clean. They said not to get it wet, not to take a bath where the moisture would rise and make it wet, I could take a shower if I covered the incision with a plastic bag and tapped it off. But in my experience, that process has never kept anything dry, so I just took sponge baths, or rather I had my private nurse give me a sponge bath.
3. The discharge papers said that my throat may be sore from the endotracheal tube which is part of general anesthesia. They also said that I should expect some muscle stiffness and overall body fatigue. Adequate rest and nutrition will contribute to the healing process.
4. Walk as much as you can! No lifting greater than 25lbs. Minimize twisting, bending, squatting, and stooping. Do only what it takes to get dressed. The cervical collar is optional; if I find that it provides support, then I should wear it when up and around or any other time if helpful.
5. I should be careful with the pain medications since they are habit forming. I should resume all pre-admission medications that I had been taking.
So it was finally time to go home. Here is where the nurse usually calls for a wheelchair. Even if you are able to walk, and have been walking in the hospital for some time, you still had to use a wheel chair - for "legal reasons". But to my surprise, when Deanna asked if I could walk out on my own, the nurse said yes - just check out at the desk. So I did. I just walked out.
Friday, December 4, 2009
10/2009 ~ Degenerative Disc Disease
10/2/09
Continued from 'Another Annoying Angiogram'
After the angiogram ruled out my heart as the source of my shoulder pain and arm and hand numbness, I was left with no answers. I had a scheduled doctor appointment with Dr. Richard. I told him about my back neck and shoulder pain, along with my right shoulder rotator cuff tendinitis, and he said I should go back to my orthopedic doctor, Dr. David.
I took his advice and went to go see Dr. David. He ordered as x-ray of my neck and shoulder. When he came back into the room with the x-ray results he was shaking his head and said, 'You really have some problems here'. The way he said it, and the shaking of his head, I thought he was just joking. But he wasn't. He said that I had degenerative disc disease, and ordered an MRI.
10/5/09
I had an MRI done on my neck and back. I later found out that I did indeed have degenerative discs - six of them. Dr. David was out of town, so he couldn't recommend a neurosurgeon, so I found one on my own. I called to make an appointment, and they told me that I had to bring my MRI into the office. I had to fill out a questionnaire about my neck pain. They said a doctor would look at them and determine if they could help. A week later, they called and said that I could make an appointment with Dr. Mark. But they didn't have any openings 6 weeks. I made the appointment, but the pain was so bad, I had to find another doctor that would be able to see me before that.
10/26/09
I was finally able to get an appointment with the doctor that my sister used for a similar problem with her disc. Actually he isn't a doctor, but a Physicians Assistant. I didn't really care at this point, I just wanted to see somebody and get the pain to stop.
He came into the exam room and basically had the same reaction that Dr. Brinton had. It was like he had never seen anything like this. He took each of the MRI films and held it up to the viewing light and pointed out, and explained, all the problems. He pointed out the vertebrae in my neck and the discs that separate them. In my case, the discs had degenerated to the point where it looked like the vertebrae were touching in some areas. He also pointed out the bone spurs which grew on the ends of the vertebrae and were causing most of the pain. But the discs were not the only problem.
Steve also pointed to where the spinal cord was placed in a canal in the middle of the vertebrae. He pointed out where there was normal spacing surrounding the spinal cord, then showed me where there were some areas where there were no space at all between the spinal cord and the vertebrae. This is a problem.
After talking over my case, it was decided that I should see his partner who specializes in nerve and muscle damage due to disc degeneration.
10/30/09
Dr. Brent did some tests on my arm to help determine if I had any nerve or muscle damage to my arm. If there was no damage I could probably get away with just doing some therapy and medication. If there was nerve damage I would have to have an operation.
Deanna was there with me so I wouldn't have to repeat all the things that the doctor said and did. It also helped having her there so she could ask questions that I would have never thought of. He started by hooking me up to a machine that would run a small current through my arm. It measure the amount of time it took for the electrical impulse to run from my elbow area down my arm to where he had placed some receptors. He measured the distance and put that information into the machine so that he could get the proper measurements. After that test he did a similar test the measured how fast the muscles responded.
The end result is that I have nerve damage, and muscle damage in my left arm. I may also have some in my right, but he didn't test that arm. They said they would call a surgeon and together they could decide on the best solution. The doctor they made the appointment with??? Dr. Mark - the same doctor that I had made an appointment with earlier, but couldn't wait. And of course, like a good boy, I cancelled my appointment, so now I had to make a new one that was even further away than the one that I originally had.
Continued from 'Another Annoying Angiogram'
After the angiogram ruled out my heart as the source of my shoulder pain and arm and hand numbness, I was left with no answers. I had a scheduled doctor appointment with Dr. Richard. I told him about my back neck and shoulder pain, along with my right shoulder rotator cuff tendinitis, and he said I should go back to my orthopedic doctor, Dr. David.
I took his advice and went to go see Dr. David. He ordered as x-ray of my neck and shoulder. When he came back into the room with the x-ray results he was shaking his head and said, 'You really have some problems here'. The way he said it, and the shaking of his head, I thought he was just joking. But he wasn't. He said that I had degenerative disc disease, and ordered an MRI.
10/5/09
I had an MRI done on my neck and back. I later found out that I did indeed have degenerative discs - six of them. Dr. David was out of town, so he couldn't recommend a neurosurgeon, so I found one on my own. I called to make an appointment, and they told me that I had to bring my MRI into the office. I had to fill out a questionnaire about my neck pain. They said a doctor would look at them and determine if they could help. A week later, they called and said that I could make an appointment with Dr. Mark. But they didn't have any openings 6 weeks. I made the appointment, but the pain was so bad, I had to find another doctor that would be able to see me before that.
10/26/09
I was finally able to get an appointment with the doctor that my sister used for a similar problem with her disc. Actually he isn't a doctor, but a Physicians Assistant. I didn't really care at this point, I just wanted to see somebody and get the pain to stop.
He came into the exam room and basically had the same reaction that Dr. Brinton had. It was like he had never seen anything like this. He took each of the MRI films and held it up to the viewing light and pointed out, and explained, all the problems. He pointed out the vertebrae in my neck and the discs that separate them. In my case, the discs had degenerated to the point where it looked like the vertebrae were touching in some areas. He also pointed out the bone spurs which grew on the ends of the vertebrae and were causing most of the pain. But the discs were not the only problem.
Steve also pointed to where the spinal cord was placed in a canal in the middle of the vertebrae. He pointed out where there was normal spacing surrounding the spinal cord, then showed me where there were some areas where there were no space at all between the spinal cord and the vertebrae. This is a problem.
After talking over my case, it was decided that I should see his partner who specializes in nerve and muscle damage due to disc degeneration.
10/30/09
Dr. Brent did some tests on my arm to help determine if I had any nerve or muscle damage to my arm. If there was no damage I could probably get away with just doing some therapy and medication. If there was nerve damage I would have to have an operation.
Deanna was there with me so I wouldn't have to repeat all the things that the doctor said and did. It also helped having her there so she could ask questions that I would have never thought of. He started by hooking me up to a machine that would run a small current through my arm. It measure the amount of time it took for the electrical impulse to run from my elbow area down my arm to where he had placed some receptors. He measured the distance and put that information into the machine so that he could get the proper measurements. After that test he did a similar test the measured how fast the muscles responded.
The end result is that I have nerve damage, and muscle damage in my left arm. I may also have some in my right, but he didn't test that arm. They said they would call a surgeon and together they could decide on the best solution. The doctor they made the appointment with??? Dr. Mark - the same doctor that I had made an appointment with earlier, but couldn't wait. And of course, like a good boy, I cancelled my appointment, so now I had to make a new one that was even further away than the one that I originally had.
10/02/2009
I finally got in to see Dr. Mark. Deanna went with me again to get the whole diagnosis. Before I went to his office he had me get another x-ray from the lab in the building next door. I then took the x-ray images, along with the MRI that I had from the earlier session, with me to the appointment.
About 15 minutes after my scheduled time, we were able to go back and wait some more in the exam room. This is the part of going to the doctor's office that I just hate. Not only do you have to wait in the waiting area, you then have to wait again in the exam room. We ended up waiting an additional 45 minutes. Heaven forbid if the doctor had some spare time between appointments. I have been known to walk out after waiting too long. Most the time I'm just there for a check up, so I can always come back, or go somewhere else. I have plenty of doctors to choose from. But in this case, he was a specialist. Not only that, but a good one, from what I hear, and I had to wait two months to see him, so walking out was not an option. But it makes you wonder how long people would wait. It would be interesting to do a study to see how long people would wait in an exam room after the nurse drops you off there, and you hear nothing more from anyone.
When he finally did come in, he had the x-rays and the MRI s with him. He said that mine was the worse case of degenerative disc disease that he had seen in over two years. For a doctor who specializes in degenerative disc disease, that's quite a few. He didn't waste anytime, and got right to the point. Although I had a choice, the only recommendation he had was that I have an operation to fix the problem. I had already seen three other doctors who obviously agreed by the fact that they sent me to see him. He was just there to confirm the obvious.
I have six discs that are bad, but I only have symptoms from the C-4 - T1 discs, so that is what he will repair. I asked him why he wouldn't fix the top three and he said that they don't do preventative work. He will only treat the problem that is showing symptoms. He said I may experience symptoms from the top three discs, and when I do, he will fix them at that time. He left no room for argument or debate. That is just the way they do it.
So my operation is set for December 22. And of course, now that I have the operation scheduled, I am not experiencing any symptoms or pain, other than weak muscles. But I'm sure the pain won't be gone forever. If I postpone the operation, and wait for the pain to come back, I may end up in pain for weeks before I am able to schedule another operation. Not only that, but since I have already met my out of pocket limit on my insurance, this operation won't cost me any out of pocket expense, whereas if I wait until next year, I would end up paying the 20% plus that the insurance doesn't cover.
Friday, November 27, 2009
11/2009 ~ Thanksgiving 2009
11/26/09
Thanksgiving is supposed to be a time for families to get together and give thanks. But for me, it only brings disappointment and heartache. I tell myself to not let the actions of my children affect me, but they do. I have six children in three states.
This Thanksgiving, my kids decided to all get together, with the exception of Rachel who live on the other side of the country, but they didn't tell me about it. They didn't invite me. They didn't tell me that they were getting together and would have invited me, but didn't because their mother was there. Nothing. Sometimes they make me feel like I'm even part of the family. I feel more like a distant uncle. Someone they have an obligation to see now and then, but there is really no relationship.
I think Lindsey has tried to keep a good relationship with me, but she didn't say anything about inviting me to the 'family reunion'. I called Lindsey on Wednesday and wished her a happy Thanksgiving. She said she was at Trevor's so I asked to talk to him, but he wasn't there. I asked to talk to Becca and wished her a happy Thanksgiving. But neither one of them told me that April was there at the time, or offer to let me talk to her.
This Thanksgiving, my kids decided to all get together, with the exception of Rachel who live on the other side of the country, but they didn't tell me about it. They didn't invite me. They didn't tell me that they were getting together and would have invited me, but didn't because their mother was there. Nothing. Sometimes they make me feel like I'm even part of the family. I feel more like a distant uncle. Someone they have an obligation to see now and then, but there is really no relationship.
I think Lindsey has tried to keep a good relationship with me, but she didn't say anything about inviting me to the 'family reunion'. I called Lindsey on Wednesday and wished her a happy Thanksgiving. She said she was at Trevor's so I asked to talk to him, but he wasn't there. I asked to talk to Becca and wished her a happy Thanksgiving. But neither one of them told me that April was there at the time, or offer to let me talk to her.
Lindsey and Scott went upstate to see Scott's parents on Thanksgiving day, but couldn't stop by to see us on the way up, so I wonder.
Summerlee told me a few days ahead of time that she was coming for Thanksgiving, from out of state, and the first words she said was that they had to spend time with Jon's family and with Trevor's family so that the kids could play together, but she wanted to stop by so I could take their family photos. Oh, and to see me. Yet she didn't call on Thanksgiving either.
Trevor didn't call me back, nor did he call me on Thanksgiving. He didn't bring the kids up, nor did he invite me to see his kids on Thanksgiving. When I called him for his birthday in December, he said "Sorry I didn't call you on Thanksgiving, but everything was so busy..." Yea, and everyday since then too, I suppose.
I called April, but got no answer on her cell phone. So I called Shawn at home. He told me that April was at Trevor's. So I called Lindsey back and asked her if there was any reason why April didn't want to talk to me. She said no. She said that she always felt it was up to the person visiting to call, not the person who was already there. Which made no sense to me. April wasn't visiting me. I called and talked to everyone everyone else. I would think they could have told me that April was there and ask if I wanted to talk. I would have thought that April would have said, "let me talk to Dad", as the phone was being passed around.
A half hour after talking to Lindsey, April called. She sounded very defensive, so I didn't ask any questions about why she did't want to talk to me, or about the problems she is having with Shawn. It was a strained conversation. I invited her to come up and have her photos taken when Summer comes on Saturday, and she said she will think about it. Translated - no, I'm not going to come see you.
I was finally able to talk to Thayne. He said he was going to stop by today on his way back to Logan, but I doubt he will show up.
On past occasions when my kids all get together, they have made Deanna and I feel left out. I suppose this comes from the divorce and my not being able to raise them, or even see them for fifteen years (more on that later), and all the lies and falsehoods that their mother has told them about me. After the divorce the relationship with my kids, except Rachel, has been strained. Bottom line I was hurt once again. Rachel was the only one who called me on Thanksgiving - even after I called her the day before. None of the other kids bothered. So not only was I unable to see any of my kids for Thanksgiving, even the three that live instate, nor from the two that are visiting, I didn't even get a call from them - except Rachel.
I wish I could explain how hurt and disappointed I feel. I try to build up walls so they can't hurt me. But then they do something to make me think that everything is good between us, only to get hurt again later on. Over and over again. Then again once more.
11/29/09
As predicted, Thayne didn't stop by on his way home. No call, no explanation, nothing. As usual, he was not true to his word.
April didn't come for photos, or to see me either. I don't think she will. She cheated on her husband, left him and the kids, and wanted to hook up with a married man, and have him break up his family as well. Given how much those same actions by her mother, hurt her when she was young, it is very difficult to understand why she would repeat the same type of behavior. Why she is having an affair with a married man, why she doesn't see that it won't work out, and why she can't see the pain it is causing to those around her.
Summerlee did come for photos. They were late. They called at 1:00 saying they were on their way. They were about 30 minutes away. That's when she told me that they had to be back for Jon's brother's son's baptism at 3:00. Because of expected traffic to the BYU - Utah game, getting back to the baptism was going to take them longer than normal. They would only have 30 minutes for a two hour photo session. Needless to say, they didn't come to see me. But at least it's good to know that I'm good for someething.
Summer's defense - it's just so hectic when they come. They have to see her family, and his family, and they are always rushed. The way I see it, it's a matter of priorities. Her priority is to spend time with everyone else, and then to have me take their family photos. In the last 4 previous visits from her to Utah, she didn't have time to see us even once. The reason she wants family photos this visit is because she says she feels left out because I took family photos for Lindsey. I also take Halloween pictures for Trevor's kids, but Becca has someone else take their family photos.
Bottom line - most of my kids hurt me, rather than make me feel good.
Summerlee told me a few days ahead of time that she was coming for Thanksgiving, from out of state, and the first words she said was that they had to spend time with Jon's family and with Trevor's family so that the kids could play together, but she wanted to stop by so I could take their family photos. Oh, and to see me. Yet she didn't call on Thanksgiving either.
Trevor didn't call me back, nor did he call me on Thanksgiving. He didn't bring the kids up, nor did he invite me to see his kids on Thanksgiving. When I called him for his birthday in December, he said "Sorry I didn't call you on Thanksgiving, but everything was so busy..." Yea, and everyday since then too, I suppose.
I called April, but got no answer on her cell phone. So I called Shawn at home. He told me that April was at Trevor's. So I called Lindsey back and asked her if there was any reason why April didn't want to talk to me. She said no. She said that she always felt it was up to the person visiting to call, not the person who was already there. Which made no sense to me. April wasn't visiting me. I called and talked to everyone everyone else. I would think they could have told me that April was there and ask if I wanted to talk. I would have thought that April would have said, "let me talk to Dad", as the phone was being passed around.
A half hour after talking to Lindsey, April called. She sounded very defensive, so I didn't ask any questions about why she did't want to talk to me, or about the problems she is having with Shawn. It was a strained conversation. I invited her to come up and have her photos taken when Summer comes on Saturday, and she said she will think about it. Translated - no, I'm not going to come see you.
I was finally able to talk to Thayne. He said he was going to stop by today on his way back to Logan, but I doubt he will show up.
On past occasions when my kids all get together, they have made Deanna and I feel left out. I suppose this comes from the divorce and my not being able to raise them, or even see them for fifteen years (more on that later), and all the lies and falsehoods that their mother has told them about me. After the divorce the relationship with my kids, except Rachel, has been strained. Bottom line I was hurt once again. Rachel was the only one who called me on Thanksgiving - even after I called her the day before. None of the other kids bothered. So not only was I unable to see any of my kids for Thanksgiving, even the three that live instate, nor from the two that are visiting, I didn't even get a call from them - except Rachel.
I wish I could explain how hurt and disappointed I feel. I try to build up walls so they can't hurt me. But then they do something to make me think that everything is good between us, only to get hurt again later on. Over and over again. Then again once more.
11/29/09
As predicted, Thayne didn't stop by on his way home. No call, no explanation, nothing. As usual, he was not true to his word.
April didn't come for photos, or to see me either. I don't think she will. She cheated on her husband, left him and the kids, and wanted to hook up with a married man, and have him break up his family as well. Given how much those same actions by her mother, hurt her when she was young, it is very difficult to understand why she would repeat the same type of behavior. Why she is having an affair with a married man, why she doesn't see that it won't work out, and why she can't see the pain it is causing to those around her.
Summerlee did come for photos. They were late. They called at 1:00 saying they were on their way. They were about 30 minutes away. That's when she told me that they had to be back for Jon's brother's son's baptism at 3:00. Because of expected traffic to the BYU - Utah game, getting back to the baptism was going to take them longer than normal. They would only have 30 minutes for a two hour photo session. Needless to say, they didn't come to see me. But at least it's good to know that I'm good for someething.
Summer's defense - it's just so hectic when they come. They have to see her family, and his family, and they are always rushed. The way I see it, it's a matter of priorities. Her priority is to spend time with everyone else, and then to have me take their family photos. In the last 4 previous visits from her to Utah, she didn't have time to see us even once. The reason she wants family photos this visit is because she says she feels left out because I took family photos for Lindsey. I also take Halloween pictures for Trevor's kids, but Becca has someone else take their family photos.
Bottom line - most of my kids hurt me, rather than make me feel good.
Wednesday, November 25, 2009
08/2009 ~ Another Annoying Angiogram
I was walking the dogs one day and noticed a pain in my left shoulder. I was not too happy about this because it was the same pain that I felt just prior to my heart attack. The pain went away after I got home, and since I didn't feel it every day, I wasn't too worried about it. After all I had just gone through open heart surgery where the gave me some 'new' arteries.
After a week or so, when the pain kept coming back, even when I was taking the dogs for runs with my bike, I decided to call the doctor. So I called Dr. Kent,, who was the heart doctor I was seeing at the time. I wasn't able to get in touch with him, but I did talk to his PA (Physician's Assistant), and he ordered a Thallium Stress Test for me.
A Thallium Stress Test is a procedure that lets the doctors see pictures of your heart while you are resting and again shortly after you have exercised, or in my case, after they gave me a drug that simulates exercise by putting stress on the heart. They gave me an injection instead of having me run on a tread mill, because my heart rate is so low, that it takes too long, and I get too tired, before I can increase my heart rate to a level they need to take the test. The pictures give the doctors detailed information about how well your heart pumps blood. By comparing the pictures of the heart at rest, next to pictures of the heart during stress, they can tell how much blood flow reaches every area of the heart, and can detect any damage or dead muscle.
In a normal Thallium Stress Test, they hook you up to a dozen or more electrodes, then have you run on a tread mill to get your heart to beat at a certain rate. Once your heart reaches that rate, they give you an injection of a radio active substance. You need to keep exercising for a short period of time (3 minutes in my case). After this part of the test, they take you into a room that holds a gamma-ray camera, used to take the pictures. You lie on a table in the camera surrounds you as it takes multiple images.
Then you move to another room where you rest for a few hours. Then you repeat the process, but without the exercise. So when you are done, they have pictures of your heart during stress, and during normal activity.
The gamma-rays from the camera pick up traces of the radioactive material as it goes through the heart. By looking at these pictures, the doctors can see the healthy arteries, indicated by the radioactive traces, and the damaged parts by the lack of radioactive traces.
In my case, I am not able to run on the tread mill long enough to get my heart rate up high enough for the test. So they give me an injection to simulate heart stress. Much easier since my normal resting heart rate is so low to begin with.
So I went in for the test, which was the fifth or sixth time I have taken this test. After they take the last pictures, the techs read the test and decide if they need to call in a doctor. So when I was done tech said that I could go home and the doctors would let me know. I was almost out the door, and almost out of the building when the tech comes running out and tells me that I have to wait to have a doctor talk to me about the results. I knew right then that something was wrong.
After about an hour I was finally able to see the doctor. He said the he saw some things in the pictures that concerned him, and combined with my symptoms he recommended that I have an angiogram to determine what, if any, damage had been done to my heart.
09/2009
After a week or so, when the pain kept coming back, even when I was taking the dogs for runs with my bike, I decided to call the doctor. So I called Dr. Kent,, who was the heart doctor I was seeing at the time. I wasn't able to get in touch with him, but I did talk to his PA (Physician's Assistant), and he ordered a Thallium Stress Test for me.
A Thallium Stress Test is a procedure that lets the doctors see pictures of your heart while you are resting and again shortly after you have exercised, or in my case, after they gave me a drug that simulates exercise by putting stress on the heart. They gave me an injection instead of having me run on a tread mill, because my heart rate is so low, that it takes too long, and I get too tired, before I can increase my heart rate to a level they need to take the test. The pictures give the doctors detailed information about how well your heart pumps blood. By comparing the pictures of the heart at rest, next to pictures of the heart during stress, they can tell how much blood flow reaches every area of the heart, and can detect any damage or dead muscle.
In a normal Thallium Stress Test, they hook you up to a dozen or more electrodes, then have you run on a tread mill to get your heart to beat at a certain rate. Once your heart reaches that rate, they give you an injection of a radio active substance. You need to keep exercising for a short period of time (3 minutes in my case). After this part of the test, they take you into a room that holds a gamma-ray camera, used to take the pictures. You lie on a table in the camera surrounds you as it takes multiple images.
Then you move to another room where you rest for a few hours. Then you repeat the process, but without the exercise. So when you are done, they have pictures of your heart during stress, and during normal activity.
The gamma-rays from the camera pick up traces of the radioactive material as it goes through the heart. By looking at these pictures, the doctors can see the healthy arteries, indicated by the radioactive traces, and the damaged parts by the lack of radioactive traces.
In my case, I am not able to run on the tread mill long enough to get my heart rate up high enough for the test. So they give me an injection to simulate heart stress. Much easier since my normal resting heart rate is so low to begin with.
So I went in for the test, which was the fifth or sixth time I have taken this test. After they take the last pictures, the techs read the test and decide if they need to call in a doctor. So when I was done tech said that I could go home and the doctors would let me know. I was almost out the door, and almost out of the building when the tech comes running out and tells me that I have to wait to have a doctor talk to me about the results. I knew right then that something was wrong.
After about an hour I was finally able to see the doctor. He said the he saw some things in the pictures that concerned him, and combined with my symptoms he recommended that I have an angiogram to determine what, if any, damage had been done to my heart.
09/2009
A couple of days later I went in for my fifth angiogram. Deanna took me to the hospital, and it was like Deja vu all over again. To my horror I had the same nurse that I had when I had my open heart bypass surgery. The reason I say horror was because she had a hard time giving me an IV. Now, let me tell you about my veins. You can see my veins from the opposite end zone on a football field. You could see the veins in my arms if you were legally blind. Whenever I am in a teaching hospital, I always get the phlebotomist students that need practice. So when a nurse has to stick me three times and still not be able to draw blood, it's a little annoying. The last time she tried, my wife took over after the first attempt. Of course she had no problem. But this time, Deanna was at work. I toyed with the idea of asking for another nurse, but I gave her one try. It wasn't pretty, but she got it in the first time.
Dr. James did the operation this time. Every time I have an operation, I tell the doctors that the anesthesia that I get always wear off fast, so make sure you give me plenty. I have woken up before in the middle of an operation, and it's not fun. Another doctor did the procedure, and I was still half awake. I told him that I could feel it and that it hurt, but he just told me that I shouldn't be feeling anything. I insisted that it was hurting, so they gave me more - enough to put me out. This time I remember going to the operating room, getting on the table, and watching them give me my happy medicine. The next thing I remember I was in the recovery room.
They moved me to a regular room later, and Deanna was there soon after. She said that when Dr. James called her at work, he told her that I had two occlusions on the new grafts that were put in place a few months earlier. She didn't hear anything after that. So when she got to the hospital, Dr. James came in and told us that while I did have a couple of occlusions, my heart was fine, and getting enough blood, and that my heart was not causing the pain in my back shoulder. He said that one of the grafts never took hold, and that the other one that was occluded never was a large one, and that while it was partially blocked, I was still getting enough blood from the other veins. He told us that he did not know why I was having the pain, but that it was not from my heart. I scheduled a follow-up appointment three weeks later, and we discussed medication. I am going to stay on my Plavix, Coumadin, and Aspirin to keep my blood thin and prevent any clotting until my next appointment in three months.
Dr. James did the operation this time. Every time I have an operation, I tell the doctors that the anesthesia that I get always wear off fast, so make sure you give me plenty. I have woken up before in the middle of an operation, and it's not fun. Another doctor did the procedure, and I was still half awake. I told him that I could feel it and that it hurt, but he just told me that I shouldn't be feeling anything. I insisted that it was hurting, so they gave me more - enough to put me out. This time I remember going to the operating room, getting on the table, and watching them give me my happy medicine. The next thing I remember I was in the recovery room.
They moved me to a regular room later, and Deanna was there soon after. She said that when Dr. James called her at work, he told her that I had two occlusions on the new grafts that were put in place a few months earlier. She didn't hear anything after that. So when she got to the hospital, Dr. James came in and told us that while I did have a couple of occlusions, my heart was fine, and getting enough blood, and that my heart was not causing the pain in my back shoulder. He said that one of the grafts never took hold, and that the other one that was occluded never was a large one, and that while it was partially blocked, I was still getting enough blood from the other veins. He told us that he did not know why I was having the pain, but that it was not from my heart. I scheduled a follow-up appointment three weeks later, and we discussed medication. I am going to stay on my Plavix, Coumadin, and Aspirin to keep my blood thin and prevent any clotting until my next appointment in three months.
Saturday, November 21, 2009
04/2003 ~ Chemo Therapy Diaries
Friday, April 04, 2003
Lump mass removed from neck by Dr. Jon
Tuesday, April 08, 2003
Dr. Jon called me on the phone while I was at work, and informed me that the pathology report was positive for level 1 non-Hodgkin’s Lymphoma.
Friday, April 11, 2003
I had my first appointment with Dr. Wendy. She did a bone marrow biopsy and ordered a CAT scan.
Tuesday, April 15, 2003
First Chemo / Rituxan / Prednisone treatment. No side effects, other than being drowsy from the Benadryl they gave me. Only took 3.5 hours, instead of the 5 – 6 they said it might take.
Wednesday, April 16, 2003
I had a CAT scan done at the hospital.
Thursday, April 17, 2003
Still no side effects. I played three games of racquetball and felt fine. Felt a little tired and achy. I was only able to play two games of racquetball before getting wiped out. It turned out that I had picked up the flu from Ann. Ached all over, tired, upset stomach, etc.
Friday, April 18, 2003
I felt really bad in the morning. Achy all over, slight stomach upset, and tired. I wanted to go home from work, but had too much work that needed to be done. Felt better in the afternoon.
Saturday, April 19, 2003
I still felt bad. Achy all over, slight stomach upset, and tired. I ended up working from home for 6 hours.
Sunday, April 20, 2003
I felt a little better, but not much. I was able to attend Church. We had all the kids up for Easter dinner. I got tired, but it wasn’t bad.
Monday, April 21, 2003
I felt great. The flu was gone, and I felt really good. I noticed a little tingling on the tips of my thumbs and index fingers. My throat felt painful – not like a sore throat, but rather how it might feel after a sore throat. Hurt a little to swallow. Got results back from the CAT scan – all clear. Bone marrow biopsy was also clear. No traces of the cancer spreading.
Tuesday, April 22, 2003
I had a hard time sleeping. I was up at 2:00 am and was working on the computer. I got a call at 3:00 am from a user in Johannesburg. They had some email problems that I had to fix. I ended up going into work for the whole day. I called Dr. Wendyr's office and told them about my fingers and throat. I went in to the office for blood work. The results were good. I had an appointment with Dr. Mike to talk about a natural holistic diet. I practiced racquetball and played a doubles game. I was tired, but I think it was from being up since 2:00 am.
Wednesday, April 23, 2003
Nothing to report.
Thursday, April 24, 2003
I had hard time sleeping again. I took some Tylenol PM to sleep. I didn’t get to sleep until after 3:30 am. I felt tired in the morning, but I felt better as the day went on. I felt bloated, but think it was from my high dosages of Prednisone. Today is the last day of the high dosage. I still have the tingling in my fingers and my throat is still slightly sore. I got tired as the day wore on. But after 4:00 PM I felt better. Practiced racquetball and had a lesson. Played couple of short games afterwards. Got a call from work and had to come back in. Didn’t get home until after 2:00 am.
Friday, April 25, 2003
Tired from being up so late. More problems at work. Finally got them fixed. Upset stomach – feels empty, even after eating. Pills didn’t take mild pain away this time, like they have before. Fingers feeling tingly further down, especially index finger and thumb.
Saturday, April 26, 2003
Felt pretty good. Did some work in the yard, repairing sprinklers and getting them ready for summer. First sign of hemorrhoids. Noticed that bruises on my arm and hand are lasting a long time.
Sunday, April 27, 2003
Tired in the morning. Felt better in afternoon. Had to work on a major crisis at work. Hair began falling out. I could pull out clumps at a time. Had our neighbor Stacey cut it real short.
Monday, April 28, 2003
Major crisis at work. Felt pretty good in general.
Tuesday, April 29, 2003
Shaved my head. Short hairs were falling on the back of my neck and collar and it was really irritating. Developed a little sore on my lip. Lips always dry. Mouth is dry sometimes, but not too bad.
Wednesday, April 30, 2003
Felling good. Did a little yard work. Felt normal. Crisis at work is over.
Thursday, May 01, 2003
Felt really good. Played three games of racquetball, and wasn’t as tired as I have been before. Mouth starting to get more dry.
Friday, May 02, 2003
Still feeling good. Got some lip balm which helps a lot.
Saturday, May 03, 2003
Sunday, May 04, 2003
Facial hair starting to fall out. It was getting all over me, and down my neck, so I shaved off the beard.
Monday, May 05, 2003
Tuesday, May 06, 2003
Wednesday, May 07, 2003
Second Chemo treatment. Took 5.5 hours this time. Different nurse, and the drips are manually controlled. The Benedryl made me tired again. Came home and slept most of the day.
Thursday, May 08, 2003
Played racquetball with Scott; more of a practice than a real game. Didn’t sleep much – if any – at all. Too much sleep during the day.
Friday, May 09, 2003
Played racquetball – cutthroat. Didn’t do too bad, but lost.
Saturday, May 10, 2003
Food tastes really different. Even water tastes different. Even more so than before. Noticing a little difference in the my fingers. Still feel funny, but not quite as much so.
Sunday, May 11, 2003
Hard time sleeping.
Monday, May 12, 2003
Played racquetball with Deanna – got a little winded. Starting to notice a lack on energy.
Tuesday, May 13, 2003
Played racquetball before Deanna’s lesson from the club instructor. Got really tired. Hard time catching my breath. Only lasted 10 minutes. Had a runny nose.
Wednesday, May 14, 2003
Starting to get a cold. More tired, probably due to cold.
Thursday, May 15, 2003
Tried to come home early, but ended up working late. Started couching, really bad. Had to sleep in other room so I wouldn’t keep Ann awake. Took Tussionex (cough syrup), and Loratab.
Friday, May 16, 2003
Worked from home. Worked half hour, then slept half hour. Worked, then slept, etc. Went in to work later, but felt really bad. Took Tussionex and Loratab in order to sleep. Deanna said I was wheezing all night.
Saturday, May 17, 2003
Coughing really bad in the morning. Went to emergency room. Said I may have pneumonia, but because my white blood count was so low, it wouldn’t show up on x-ray. Started me on anti-biotic.
Sunday, May 18, 2003
Stayed home and slept most of the day.
Monday, May 19, 2003
Went to work. Tired, but felt better than Saturday or Sunday.
Tuesday, May 20, 2003
Hard time sleeping. Still coughing. Take Tussionex and Tylenol at bedtime.
Wednesday, May 21, 2003
Same.
Thursday, May 22, 2003
Still tired, but had to work till 11:00 pm.
Friday, May 23, 2003
Tired, and coughing. Boss sent me home early (9:00 pm) because I was coughing so much.
Saturday, May 24, 2003
Felt pretty good. Went to work for a little bit then shopping. Worked in the yard a little.
Sunday, May 25, 2003
Felt good until around 2:00 pm. Then I got real tired. Had to lay down and take a nap. No energy.
Monday, May 26, 2003
Worked in the yard in the morning. Got real, real tired. Had to quit and come in and take a 2 hr. nap at about 1:00 pm. Had to take another at about 6:30 pm. Just no energy. My foot hurts. I think it’s Gout. It comes and goes. If it continues I usually take an extra Allopurinol.
Tuesday, May 27, 2003
Foot hurts more now. Swollen. Worst pain ever during the night. Had to crawl to get some pain pills, but they didn’t take all the pain away. Foot was swollen, red, and hot on the top of my foot.
Wednesday, May 28, 2003
Third Chemo treatment. Only had 25 MG of Benadryl instead of 50. Much better. Didn’t get as tired. Dr. Wendy looked at my foot and ordered an x-ray. She said that the prednisone should help. After the treatment my foot felt much better. I can actually put weight on it.
Thursday, May 29, 2003
Pain in foot was worse in the morning. Had to use crutches. It seems that the prednisone didn’t help much. But later on in the day I was able to hobble around without them, but it was still sore. Worked on the trailer and picked up some trees with Troy.
Friday, May 30, 2003
Pain in foot even more painful this morning. Cancelled campout with Trevor and Jordan. Called Dr. Richard. He said he didn’t think it could be gout because I have been taking Allopurinol. He said I should get my foot x-rayed, so I did. It was not broken. Picked up herbal remedy for Gout – Tart Cherry Concentrate. Tried some. It seemed to work in a couple of hours. Had Dr. L call in an order for anti-inflammatory in case the Cherry medicine didn’t work. Started taking Coral Calcium for the cancer. Supposed to lower the ph level and prevent and help cure cancer. Skeptical, but I’ll try it.
Saturday, May 31, 2003
Pain in foot worse in the morning again. Prednisone, Allopurinol, and Cherry medicine has not helped. Still managed to hobble out (with crutch), and help kids pick weeds. Picked up Vioxx from Drug Store because pain was not going away. Took Cherry medicine again also. Pain again felt better in the late afternoon evening. Foot still sore, but I could hobble on it.
Sunday, June 01, 2003
Pain again in the morning. Crutches again for about two hours, then I could hobble. But later in the day, I could put my shoes on and it wasn’t too bad. The pain has moved from the top to the side, and it isn’t swollen any more.
Monday, June 02, 2003
Relatively little pain in my foot – especially for a morning. I think I’ve finally turned the corner. No effects from the Chemo, other than my hair, finger tips, and taste. But my finger tips are gradually getting the feeling back, or rather the tingling is going away – very gradually.
Tuesday, June 03, 2003
Foot was worse this morning. Still not bad, but worse than yesterday. Took both Cherry Juice and Vioxx.
Wednesday, June 04, 2003
No pain in my foot at all. Back to normal. Only took Vioxx. No other problems. Feel good. Catching up with work at work, and working in the yard when I come home.
Thursday, June 05, 2003
Same as yesterday. Cutting down on red meat in diet. Trying to eat more salads and yogurt.
Friday, June 06, 2003
No problems. Feeling normal.
Saturday, June 07, 2003
Got tired doing little things in the yard. Not able to do as much, as fast as I would like to have done.
Sunday, June 08, 2003
Got headache and had to lay down. Felt worn out.
Monday, June 09, 2003
11 Year Anniversary of Kidney transplant! Went to work, even though I felt tired. Was going to leave at 3:00, but stayed till 5:00.
Tuesday, June 10, 2003
After work I emptied the trailer at the dump. Completely wore me out. Head felt like I was standing on it. When I would bend over, my eye hurt – like when you eat something cold too fast and like when you got water up your nose – both at the same time. Came home from the dump and slept for two hours.
Wednesday, June 11, 2003
Had my blood work done. WBC was 1.9, RBC was 3.29, and HCT was 30.9. Got a Neupogen shot for the WBC. Went to work, but just felt very, very tired.
Thursday, June 12, 2003
Feeling better. Had another Neupogen shot today.
Friday, June 13, 2003
Had another Neupgen shot. Feeling OK, just tired and can never get rid of this cold.
Saturday, June 14, 2003
Went to the hospital for another Neupogen shot. Felt pretty good. Had neighbors come and help take down the old fence to get ready for the new fence. They also help widen one of the paths on the hill in the back yard. I was able to help a little, but got tired fast.
Sunday, June 15, 2003
Relaxed day. Felt OK, but then I wasn’t doing anything remotely physical.
Monday, June 16, 2003
Felt good. Best I have in a long time. Trevor came over after work and we put gravel down on the path in the back.
Tuesday, June 17, 2003
Fourth and last chemo treatment. My WBC was at 20, which really surprised Dr. Wendy. She said that I really did well on the Neupogen. She was expecting the WBC to go up, but not that much. Last time I had Neupalast. It was a long lasting shot for 10 days. The Neupgen is the same thing, only smaller doses that you are supposed to take for 10 days. The problem was that most patients didn’t take it for 10 days, so the drug company made one do the same thing in one day, and cost 10 times as much. Treatment went fine. Slept most of the day. Felt fine afterwards.
Wednesday, June 18, 2003
Felt fine. Still ever present cold. Still unable to sleep through the night. But already starting to feel more tired.
Thursday, June 19, 2003
Doing well. Tired, but OK. Was able to set up some sprinklers for the new trees, but wasn’t able to finish fixing all the others that needed it.
Friday, June 20, 2003
I’m writing this early in the morning because, once again I couldn’t sleep through the night. I think the ever present cold might have something to do with it.
Saturday, June 21, 2003
Tried to move and fix some sprinklers in the morning. Very easy stuff. But it wore me completely out, down to the bone. Couldn’t do anything the rest of the day. Missed a leadership meeting.
Sunday, June 22, 2003
Still tired from yesterday. Didn’t do much. Didn’t go anyway. Stayed home from Church. Had to work late Sunday night to fix email problem in China.
Monday, June 23, 2003
Worked from home. Really tired. Work / sleep / work / sleep etc. But I got a lot of work done. Ann kicked me out of the bedroom because my coughing was keeping her up all night. Can't get rid of it. I don't sleep very well, not just because of the cough, but just can't relax.
Tuesday, June 24, 2003
Started off with a phone call from work early in the morning. Started working and didn’t take a break till after 1:00. Then finished rest of cleanup projects. Felt a little better, but only because I never left my chair. Still coughing, running nose.
Wednesday, June 25, 2003
Went to work in the morning, but couldn’t handle it. I got hot and sweaty, then cold, then hot, and always tired. Came home at 1:00 and took a nap. Then worked from home to get my work done.
Thursday, June 26, 2003
Worked a full day at the office. Felt OK, but took several naps at my chair. Got a lot of work done.
Friday, June 27, 2003
Worked a little from home, but already had 40 hours in before the day started. I think I worked so much that now I can’t do anything else. I still feel run down, but sitting at a desk doesn't wear me out, so I was able to work from home and not feel too bad. I meet with Dr Robert for the first time. Had an appointment, and minor examine. He said everything looks good as far as treatment goes. He is going to give me some time to recover, they start the radiation on July.
Saturday, June 28, 2003
This last week was the worse since I started Chemo. I felt better today - even mowed, trimmed, and fertilized the lawn. But that's all I could do. I still have a bad cough. Still sleeping in other bedroom. Still taking Tylenol PM, and Tussenix, and Antivan. But it doesn't seem to help.
Sunday, June 29, 2003
Coughed all night long, even with taking Tussinex, Tylenol PM, and Antivan. Just couldn't stop coughing - laying down, sitting in the recliner, sitting up - still kept coughing. So now, not only do I feel run down, but I am tired also.
Monday, June 30, 2003
Same as yesterday.
Tuesday, July 01, 2003
Same as yesterday. Stayed home from work.
Wednesday, July 02, 2003
Stayed home from work. Had my Blood work done again. The WBC was higher, but still low. My RBC and Hmg were the same - low. That accounts for my feeling so run down still, but and why I'm having such a hard time getting rid of this cough.
Thursday, July 03, 2003
Had the worst night yet last night. I think the NyQuil is what is keeping me awake. Then I feel tired and run down the rest of the day. I was finally able to get some sleep at about 6:00 AM, for about a half hour. Was able to take a couple of short naps. Went to Bingham Copper mines - it was a vacation day. Ann drove and I didn't do much.
Friday, July 04, 2003
Was able to sleep most of the last night. Cough only woke me up three or four times. Worked in the garage, which wore me out by the end of the day, even though I didn't do anything strenuous.
Saturday, July 05, 2003
Went on a day trip. Just sat in the car most of the day. I was feeling better, but still coughing. Noticed that my neck gland, under my jaw was swollen.
Sunday, July 06, 2003
Had a restful day.
Monday, July 07, 2003
I was able to go back to work, and work a full day without getting tired. Still coughing at night, but not as much. More than Ann would like, but not enough to keep us awake all night.
Tuesday, July 08, 2003
Worked a full day at the office. Felt OK, but took several naps at my chair. Got a lot of work done.
Wednesday, July 09, 2003
Same as yesterday
Thursday, July 10, 2003
Same as yesterday
Friday, July 11, 2003
Same as yesterday
Saturday, July 12, 2003
Mowed the lawn and did a little yard work in the morning. Came in and rested between projects. Feeling good, but still get tired if I do any strenuous work. Lump in neck getting larger.
Sunday, July 13, 2003
Still feeling good.
12/2008 ~ Quadruple Open Heart Bypass
These are the emails that my dear Deanna sent to family while I was in the hospital:
Date:
Hello Everyone! Merry Christmas!
Lee went into the hospital yesterday. After we had been there six hours they finally started the medicine that the Dr. wanted him to have before his surgery. It's an IV drip medication. It was kind of frustrating to be there for over 24 hours and not have anything done. But they made up for it today. He went to x-ray for a chest film. He had another EKG done. He had an ultrasound of his carotid arteries. He spoke with a dietician, respiratory therapist, and the nurse. The nurse gave him a demonstration of what his surgery will entail. Then the surgeon came in and talked with him some more. He got his legs shaved so that they could operate in a clean environment (when they take the blood vessels from his leg to put them in his heart. He also had an enjoyable visit from his son Trevor, and his grandchildren Jordan and Addie who also had the demonstration of the heart operation from the nurse. The Jordan said it was weird. The only person that Lee has not talked with yet is the anesthesiologist. So I think he is ready for tomorrow, or as ready as he can be to undertake by-pass surgery.
I really want to thank everyone that has called or e-mailed. We have a wonderful family and friends that support and love us. WE appreciate you all. I will send updates daily. We love you all!
Date:
Well, it has been a very long day. I arrived at the hospital about
I will continue to keep you posted unless you tell me otherwise. We appreciate all the love and concern that has been expressed and the many prayers offered in our behalf. Thank you all!
Date:
Wow, what a difference a few hours makes. When I got to the hospital at
I don't know what the plan is going to be. It was easy before~~come in for IV medication for two days prior to surgery, have surgery, go to ICU, leave ICU and go to the thoracic floor. Done, now what! I'm sure they will get him up walking more, advance his diet as tolerated, get him off the pain pump to oral medications and then discharge to home.
Lee has had some real wonderful nurses and care providers. So far, it has been a pleasant stay. I just hope he keeps improving like he has been.
Thank you again for all your concern and prayers. I'll keep you all posted on how he is doing. Love to you all!
Date:
Hello Everyone!
Lee called early this morning and startled me out of a very deep sleep. In fact I hit the alarm on my radio before I realized it was the phone. He told me he didn't have a very good night and he wanted me to come to the hospital. I quickly showered and left. When I got there, he was doing better he said. I'm not sure exactly what happened but he was having a hard time breathing and then a hard time getting comfortable. He has gained over 10 lbs in fluid and that may have contributed to the breathing difficulty, they also repositioned him in bed and the chest tubes where causing a lot of discomfort, and therefore contributed to breathing difficulty.
Lee was sitting up in bed when I arrived. He had finished his breakfast. The nurse was trying to get a medication from the pharmacy for him. One of the nephrologists came in to check on him. Lee told the Dr. that he thought the fluid buildup was causing the breathing problems, and asked if he could have some Lasix - a diuretic to remove fluid from the body. It took about an hour and a half to get the Lasix drip going. I think Lee had about 700 cc of liquid out within an hour after they started the Lasix.
His lunch came, he ate really well. The nurse came in to change his dressings. They took the ace wrap off his left leg where they removed the graft vein. I thought Lee was just going to have two incisions in his leg, one on each end of the vein to be grafted. But there were about five little incisions going down his leg from about an inch above his knee to about three inches above his ankle. The dressing on his chest was next to be changed. The chest incision looked really good, she did not put another dressing on the steri-strips. She then took the dressing off from the chest-tubes and redressed them. She wrapped a Vaseline gauze around the base of the chest-tubes where they were inserted and said that was to keep air from getting in. She then put some gauze over the Vaseline-coated ones and taped them down. Then she put the pacer wires on top of the gauze and taped them down too.
Scott and Lindsey came with the kids. Little Avery was quite concerned about Grandpa and was really happy to see him. I am glad that today he had some good coloring so it didn't concern the kids. They made get-well cards for grandpa and brought them to the hospital. Avery got to watch grandpa get a insulin shot, and I showed all the kids Grandpa's Owie. It was so good to see them and I know Lee was very happy that they came.
I just called Lee to see how he is doing. He had a bed bath, and he said that felt good. Cardiac rehab got him up walking in the hall. He walked 225 feet, the therapist told Lee he did really well. He had a regular dinner tray ~ steak, mashed potatoes, carrots. He said it tasted good. He said he was feeling ok. I will go up tomorrow about 10-11:00.
I came home after Scott and Lindsey left. I crawled into bed, and was snuggled by "the girls". I slept for four hours. I guess it is all catching up to me now. I am so relieved that Lee is doing so well after the surgery and that he is out of the ICU. I told Lee yesterday when I saw him sitting up in the chair in the ICU that I was glad I was his wife. He said "What do you mean?" Then I told him that I was glad I wasn't his widow. We have been blessed! I know the blessing that Scott and Trevor gave him, and all the prayers offered in our behalf have blessed us. My husband is amazingly strong and I am so thankful that he is. Those trials of dialysis has strengthened him to be able to tolerate the trial of cancer and its treatment, and this surgery and its recovery. Again we thank you for your love and concern. Love to you all!
Date:
Hello Everyone!
Lee had a pretty good day today. Sometime either during the night or very early this morning his heart rhythm changed from normal sinus rhythm to atrial fibrillation. I don't know what the significance of that is. Its been a long time since nursing school and I've not worked a lot with heart rhythms. But they did try to convert his rhythm by giving him some medication. They gave him a bolus of Amorodione and Lee did not tolerate it very well. It caused pain in his hips, chest, back. It took a while to get him comfortable again. By the time I got to the hospital he was doing much better. When I left he was still in atrial fib and still receiving the amorodione by IV.
Lee walked in the halls twice today. He still doesn't have much of a appetite but he is trying to eat. His meals actually look pretty good for hospital food. He had a dressing change again. He received some more Lasix and has really good urine output. He got out of bed and I gave him a bath, I can't call it a bed bath because he wasn't in bed, but he didn't sit in a tub either. He went for over two hours without using his pain pump. And he says he is feelnng good.
Lee had some visitors today. First, Trevor and Becca and the kids came. They looked at grandpa's owie too. Addie didn't like seeing the bloody drainage from the chest-tubes, but was fascinated by Grandpa's heart pictures even though she called them gross. Second, his niece Sarah and Jared came with Eli and Ava. Third, was his nephew Elliott and Julie and their girls. Lee was drowsy when they came and not very companionable, but I know he appreciates the visits and the concern expressed.
Lee has had the same nurse now for two days in a row. That has been very nice because she knows us and his history and we don't have to keep repeating it. She will probably take care of him again tomorrow. She explained to us that they will take his chest tubes out when his drainage is below 200 cc for the day. Today it was 220, so he's getting pretty close. She said that next to be removed would be the Foley catheter. The last to be removed would be the heart pacing wires. We're still hoping that Tuesday will be the day he is discharged. I can't think of a more appropriate birthday present than to have him home.
Hope you all are doing well and that you are all ready for Christmas. Take Care!
Date:
Boy oh boy, what a great day Lee had today! He loved his breakfast, Belgian Waffles. He had a good walk in the hall. The respiratory therapist said she didn't need to check on him any more because he was doing so well with his incentive spirometer. They removed his chest-tubes. Gosh those things where huge and long! They switched him from IV pain medication to oral pain medication. He is still on the amorodione, but they took him to the cath lab and did a synchronized cardiac conversion, so now he is in normal sinus rhythm. While he was medicated for the cardiac conversion, they removed his foley catheter. So he had a great day.
He had a couple of visitors today and because he isn't on the pain pump he was a lot more alert. I still do not know when they are going to let him come home. I was hoping it would be tomorrow, but no one has said anything. The nephrologist still comes in every day. He says that Lee's kidney is doing well. That was a big concern when we started this process, keeping that functioning well. But everything is looking great.
I still can't believe how well Lee has done. Only today did he mention that he had felt a little discomfort in his sternum. He has not complained of any discomfort in his leg where they removed the graft. I hope he does as well at home. We are concerned about the dogs. They are going to be so excited to see him, and we don't want them jumping on him. Shadow's excitement I am sure, will be elevated 100 decibels. Already my ears are hurting.
We had a little more snow today. It looks so pretty when it is fresh, but I still hate driving in it. Hope you and yours are all doing well. Love to you all!
Date:
Hello again!
I am not going to the hospital today. It is snowing, so I'm going to clean up around here.
Lee called. His surgeon came in this morning. They are going to remove the pacer wires. He is still in normal sinus rhythm and doing well that way. Urine output is good. His hematocrit is low, they are going to give him two units of blood today. And the big news is that he will be discharged on Thursday.
I'm going to go to work tomorrow, that will be my only shift this week. I won't go to work again until next Tuesday.
Hope everyone is doing ok. Take Care!
Date:
Well, I think this will probably be the last e-mail that I send about Lee and his surgery. He will be coming home tomorrow! I stopped by to see him after I got off work today. His dinner arrived while I was there. Again it looked pretty good for hospital food. Then the nurse came in and started talking to him about his medications. He is so ready to come home, and I am so ready to have him home.
Thank you all for your visits, your calls and your e-mails. It means a lot to Lee and me that you would take the time to write or visit. We love you all and wish you all a Merry Christmas and a healthful New Year!
Date:
He's Home! He's Home!
We got home about
Just thought I would let you all know that he is home now. Take Care Everyone and Merry Christmas!
12/31/08
This is an email I sent out to family and friends after my operation.
Hi everyone,
As many of you already know, I had open heart surgery last week. Deanna sent out emails on a daily basis to many of you, but in looking at the list of people she sent email to, some were omitted because she didn’t have an email address, or she didn’t know would be interested in receiving them. But it wasn’t because you weren’t important. So I have attached a word document (Lee’s Heart Operation), which includes all the emails that she sent, giving the day by day updates. If you haven’t read them, now’s your chance - you can get all the gory details. Which got me thinking – who cares about the details? I would, so I am guessing that some of you may also want to know more about this operation. I think it is just fascinating that I go see a doctor because I get tired walking the dogs, and I end up having my chest split open, put on a heart lung machine, have my heart stopped, having veins cut from my leg and attached to my heart, then get sewed back up again. But hey – that’s just me. Yet telling this story would be pointless if it was nothing more than trying to elicit some sort of feeling from you. Therefore, I am including some advice as I tell this story.
___________________________________________
I am home now and feeling much, better. I am still sore, tired and weak, but at least I’m comfortable at home, and I have the best in-home nurse you could ask for. I get tired very easily, I’m on a lot of drugs so I feel like I’m walking in a light fog, and I feel like I have a 20 lb weight pressing down on my chest all the time, even when I stand up. I feel like I am in slow motion all the time. But believe me, I am better than I what I was. I’m still not as well as before I went into the hospital, but I am better than when I left.
Here are just a few details…
Symptoms: (in case you were interested, these are not included in Deanna’s updates). I started feeling tired while walking the dogs, or trying to hike to get some good photos. The tiredness just kept getting worse and worse. Not heart pains, but just shortness of breath. I could still do everything I used to be able to do, but I just got tired sooner. Not a big deal. But - I made an appointment with a cardiologist just to be sure. In fact, I made the appointment just to make sure there was nothing wrong so that I could try to build up my endurance, even if I felt pain. And as the saying goes: No Pain – No Glory.
Advice: Don’t be afraid of getting a checkup for the smallest of symptoms. I have had three angioplasties, and all three were as a result of not know what was wrong, but just feeling that things weren’t right. Same thing happened this time, only the remedy was a little different than expected. So don’t wait until you have a heart attack before you get heart symptoms checked out. Listen to what your body is trying to tell you, and get a second opinion.
Tests: They did a Thallium Stress Test to see how well my heart pumped the blood through the heart. The test were negative – no problems. But I kept getting weaker and weaker. So I went back in and they did an angiogram, where they put a probe up the artery of your leg into the heart to see if there is any heart damage. They found some, so they inserted another (I already had four) stent, to keep the artery open. They were hoping that would solve the problem, but it didn’t. There were two other vessels that were blocked, but they couldn’t get to them. So three weeks later they did another angiogram. Before they did the procedure, they told me there probably wasn’t much they could do, and that I would just have to live with the shortness of breath, and change my lifestyle dramatically. After the angiogram they found another major vessel that was 70% blocked, so they didn’t fix anything this time, but rather told me that I would need to have open heart surgery.
Advice: Even if the tests come back negative, if you are still not feeling well, go back and have another checkup. This was the hardest part for me. I had just been to the doctor. They had run all the tests, and the tests said I was fine. But I didn’t feel better. When I finally did go back, I talked to the doctor some more about it and he said that the tests are only indicators, and are wrong about 10% of the time. But given a person’s health history, genetics, and symptoms those tests can be overridden and a more accurate, albeit more expensive test can be done. This is why I had the first angiogram – to verify that there was or wasn’t a problem. Even after that angiogram, and the resulting angioplasty, they were unable to ‘fix’ two small arteries. They were hoping that by fixing the large one I would be better. Once again, I wasn’t so I went back again. I don’t know what I was hoping for, I just knew that there was still something wrong. Bottom line – don’t give up. Stay in touch with the doctors. Go back again and again until you find a solution.
Operation: They ended up doing a Quadruple Coronary Artery Bypass Graft open heart surgery. Basically they cut my chest open through the sternum, spread my ribs apart with a rib spreader, then hooked me up to a heart and lung machine, stopped the heart, took some veins from my leg and connected them to the heart’s artery and bypassed the blockage points and attached the vein the heart chamber that needed more blood flow. Then they started my heart again, took me off the heart lung machine, attached my chest together with bailing wire, sewed me up, and I was done. Deanna’s logs will let you know the details after this point.
Advice: Be aware of what they are doing and why. They will tell you everything they are doing and why. Talk to the nurses and the doctors about what is going on. I had several occasions to disagree with my treatment simply because I know my body better than they do. I won’t bore you with the detail (ha, ha), but on one occasion I insisted on having some Lasix (a diuretic water pill to eliminate water). The Physician’s Assistant tried to tell me that water gain was common on this type of operation and that I didn’t really need it. I told him that I had it as part of my daily medications, and that I was having a hard time breathing because of the extra water. He finally relented and I got the relief that I needed. The next day we had to go through the same thing. When I asked him for some more, his comment was, “Looks like you have a fixation for Lasix so I guess we can give you some”. RUDE! After that I didn’t need them, and I didn’t ask for them. But don’t let them intimidate you. At the same time you need to listen to the doctors and reasoning behind what they are doing. After my little run in with the PA, I had a good talk with my Nephrologist / Internist. He was able to listen and explain much better and became my source of well being and for knowing what was really going on.
I guess a successful outcome comes down to three words: Talk, Listen, and Communicate. You can do one, two, or all three. Both you and the doctors have to do all three.
Recovery: I can’t lift anything heavy (more than a few pounds), or drive for 6 weeks. What I can do, and what they encourage me to do is to walk. They say it will take 2 – 4 months before I am back to normal, which will be really nice since I’ve never been normal before.
I have included some pictures if you are interested. Warning: They are very graphic. Some are from inside the operating room, some are from Deanna’s cell phone, and some are from Deanna’s camera. I was going to put them on a slide show, but then you would have to see all or none, so I am just attaching them with a description so you can decide if you want to view them.
There you have it. I hope you have learned something. Let me know if you have any questions.
Thanks to everyone for their thoughts, prayers, cards, and flowers. It is very helpful to know that there are people who care!
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